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Standards & Interoperability (S&I) Framework
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Pages and Files
Introduction & Overview
Processes & Guidelines
Getting Started as a Participant
Community Enabling Toolkit (CET)
Standards Development Support
Wiki User Guide
Clinical Quality Framework (CQF)
Data Access Framework (DAF)
Data Provenance (DPROV)
PDMP & Health IT Integration (PDMP)
Structured Data Capture (SDC)
Active Community Led or Other Agency Led Initiatives
a LOINC Order Code
electronic Long-Term Services and Supports (eLTSS)
Electronic Submission of Medical Documentation (esMD)
Laboratory Orders Interface (LOI)
Laboratory Results Interface (LRI)
Public Health Tiger Team
BlueButton Plus (BB+)
Data Segmentation for Privacy (DS4P)
EU-US eHealth Cooperation Initiative (EU-US)
Longitudinal Coordination of Care
Provider Directories (PD)
Public Health (PHRI)
Query Health (QH)
Transitions of Care (TOC)
Privacy on FHIR
Open Test Method Development Pilot Program
Direct Project (S&I Archetype)
Clinical Element Data Dictionary (CEDD)
Model Driven Health Tools
Face 2 Face Meetings
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Data Segmentation for Privacy Charter and Members
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RI / Pilots
Jericho/UT Austin Pilot
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S&H - Standards Homepage
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Harmonization and Standards
What is Data Segmentation?
The term “data segmentation” refers to the process of sequestering from capture, access or view certain data elements that are perceived by a legal entity, institution, organization, or individual as being undesirable to share. This basic definition, however, does not account for the multiple permutations of segmentation in the health care context (
, granularity), nor does it adequately capture the varied considerations required for development of segmentation policy.
Enable the implementation and management of disclosure policies that originate from the patient, the law, or an organization, in an interoperable manner within an electronic health information exchange environment, so that individually identifiable health information may be appropriately shared for: 1) Patient treatment and care coordination; 2) Third party payment; 3) Analysis and reporting for operations, utilization, access quality and outcomes; 4) Public health reporting; 5) Population health, technology assessment and research
Purpose and Goals
The purpose of this initiative is to enable the implementation and management of varying disclosure policies in an electronic health information exchange environment in an interoperable manner with the goal to produce a pilot project allowing providers to share portions of an electronic medical record while not sharing others, such as information related to substance abuse treatment, which is given heightened protection under the law.
This initiative will focus on defining the use case, its user stories and requirements supporting a standards-based privacy protection architecture and specifically application of data segmentation for interchange across systems. Together with recommendations from the HITSC, the requirements will serve as the basis for a reference model validating the completeness of the standards in fulfilling the defined requirements and maintaining the privacy of the patient data based on patient consent decisions, applicable law and policies. Initial use case functional and data set requirements will encompass metadata tagging of privacy attributes in clinical and policy records and specifically considerations for 42 CFR Part 2 and non-disclosure to payers of patients paying out-of-pocket for their care as defined in Proposed Rule 45 CFR Part 164.522(a)(1)(iv) Existing relevant standards, implementation guides, prototypes and technologies will be looked to when developing the reference model.
Successful pilot test of a privacy protection prototype compliant with HIPAA privacy and security enforcement rules across multiple systems demonstrating interoperability (prioritize care settings for the pilot).
Validation of the applicability and adequacy of the recommended standard(s) in implementing a data segmentation solution.
Recognizing the importance of perspective, it is critical to the success of this initiative to include: Patients, State HIEs, Providers, Provider Organizations, HISPs, Federal Agencies, Private HIEs, SDOs, Payers, Security/Privacy professionals, Privacy Advocacy Groups, Consumers and
Notional Project Timeline
Project Manager, RI/Pilot Lead
Standards Development Support Team Lead
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