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  • Pilots
  • IHE Profile
    • The updated version of the IHE SDC Profile is now published. This version is available on the IHE website under QRPH listing here. The updated PDF version of the file is also available here.
  • FHIR Profile
    • The updated version of the SDC IHE to FHIR mapping spreadsheet is available here.
    • A list of FHIR SDC issues from the January 2016 FHIR Connectathon are available to view here. These issues have all been entered in the tracker.

Weekly Meetings

Please select the url first, then use the numbers and codes provided by WebEx to dial-in.
Wednesdays @ 3:00 pm
Wednesdays @ 4:00 pm
Thursdays @ 3:25 pm

SDC FHIR Coordination

SDC Pilots

Community Meeting

Meeting Name: SDC FHIR Coordination
Date: August 3, 2016
Time: 3:00 - 4:00 pm Eastern
Dial In: 1-415-655-0001
Access code: 731 602 925
Password: meeting
Meeting Name: SDC Pilots
Date: July 27, 2016
Time: 4:00 - 5:00 pm Eastern
Dial In: 1-415-655-0001
Access code: 731 602 925
Password: meeting
Meeting Name: SDC Community Meeting
Date: July 28, 2016
Time: 3:25 - 4:30 pm Eastern
Dial-In: 1-650-479-3208
Access Code: 663 397 496
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  • Public Health Informatics Conference will take place from August 21-24 in Atlanta, GA.
    • The Public Health Informatics Conference delivers opportunities to connect with colleagues, share new research, and discover how to navigate the increasingly connected public health enterprise.
    • Registration is now open. To register click here.
  • Concordium 2016 will take place from September 12-13 in Crystal City, VA.
    • Concordium 2016 aims to advance the strategic development and use of evidence to transform health systems. Concordium showcases innovation and leading ideas; provides an opportunity to share emerging science and applications; and promote collaboration to improve health.
    • Registration is now open. To register click here.
  • AMIA 2016 Annual Symposium will take place from November 12-16 in Chicago, IL.
    • Sharing scientific discovery and demonstrating best practice and innovation is at the core of the AMIA Symposium experience..

Initiative Overview and Scope

For detailed information on initiative goals, objectives and intended outcomes, please see the SDC Project Charter.

Summary: The Structured Data Capture (SDC) initiative will develop and validate a standards-based data architecture so that a structured set of data can be accessed from EHRs and be stored for merger with comparable data for other relevant purposes to include:
  • The electronic Case Report Form (eCRF) used for clinical research including Patient Centered Outcomes Research (PCOR)
  • The Incident Report used for patient safety reporting leveraging AHRQ ‘Common Formats’
  • The Surveillance Case Report Form used for public health reporting of infectious diseases
  • The collection of patient information used for determination of coverage, as resources permit.

Following is a visual conceptualization of the initiative workflow.

The proposed infrastructure will consist of four new standards that will enable EHRs to capture and store structured data. These will consist of: a standard for the CDEs that will be used to fill the specified forms or templates; a standard for the structure or design of the form or template (container); a standard for how EHRs interact with the form or template; and a standard to enable these forms or templates to auto-populate with data extracted from the existing EHR. The standards will facilitate the collection of data in such a way that any researcher, clinical trial sponsor and/or reporting entity can access and interpret the data in electronic format. For more information about this initiative, please see the Structured Data Capture Charter.

Initiative Contacts

Initiative Coordinator
Ed Hammond
ONC Lead
Farrah Darbouze
Project Manager
Jenny Brush
PM Support
Lauren Caruso
Harmonization and Standards Development Support
Perri Smith
Technical Lead and Standards Development Support
Vijay Shah
NLM Teaming Partner
Lisa Lang
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